Comments for Danielles MLD Personal Page http://daniellesacchetti.mldfamily.org MLD Family Personal Pages weblog Wed, 17 Feb 2010 16:31:53 +0000 hourly 1 http://wordpress.org/?v=3.0 Comment on Memorial Location by Patricia Shifflett http://daniellesacchetti.mldfamily.org/2010/02/13/186/comment-page-1/#comment-397 Patricia Shifflett Wed, 17 Feb 2010 16:31:53 +0000 http://daniellesacchetti.mldfamily.org/2010/02/13/186/#comment-397 I'm so sorry for the passing of your little Princess Danielle.You now can rest alittle knowing that she is with God and her other MLD friends.Danielle is now your Guardian Angel she is by your side all the time to watch over you. I'm a grandma of Alysa Dye who has MLD too,we just celebrate her 4th b-day.Everyday we wonder is this going to be her last day we don't know .So we are just greatful to God for letting us still have her and share in her life.Just remember Danielle is watching over you and she can hear what you are saying.She will always be in your heart forever I’m so sorry for the passing of your little Princess Danielle.You now can rest alittle knowing that she is with God and her other MLD friends.Danielle is now your Guardian Angel she is by your side all the time to watch over you.
I’m a grandma of Alysa Dye who has MLD too,we just celebrate her 4th b-day.Everyday we wonder is this going to be her last day we don’t know .So we are just greatful to God for letting us still have her and share in her life.Just remember Danielle is watching over you and she can hear what you are saying.She will always be in your heart forever

]]> Comment on Feb. 11th, 2010 by Joanne Giampa http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-396 Joanne Giampa Sun, 14 Feb 2010 23:34:32 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-396 Dear Tony and Megan, Even though I have not been around in recent years, the family has kept me posted of your precious Danielle's struggles. Please accept my most sincerest sympathies on your unfathomable loss. My prayers are with you as you face this future without Danielle physically with you. She will always be that angel that now watches over all of you. Love, Joanne (Larry's first wife) Dear Tony and Megan,

Even though I have not been around in recent years, the family has kept me posted of your precious Danielle’s struggles. Please accept my most sincerest sympathies on your unfathomable loss. My prayers are with you as you face this future without Danielle physically with you. She will always be that angel that now watches over all of you.

Love, Joanne (Larry’s first wife)

]]> Comment on Memorial Location by Julie Allen http://daniellesacchetti.mldfamily.org/2010/02/13/186/comment-page-1/#comment-395 Julie Allen Sun, 14 Feb 2010 05:02:07 +0000 http://daniellesacchetti.mldfamily.org/2010/02/13/186/#comment-395 Megan and Tony - I am so sorry. Thank you for sharing Danielle's story with all families and the world. Blessings Julie www.caringbridge.org/visit/tylerwaynemcadams Megan and Tony – I am so sorry. Thank you for sharing Danielle’s story with all families and the world.

Blessings
Julie

http://www.caringbridge.org/visit/tylerwaynemcadams

]]> Comment on Feb. 11th, 2010 by Dana Allard http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-394 Dana Allard Sun, 14 Feb 2010 00:17:21 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-394 We are so sorry for your loss and are keeping your families in our prayers in this difficult time. You are all such a wonderful and loving family and gave Danielle everything possible and I know she's up in heaven smiling and having fun. Please let us know if you need anything. Love, Dana and Jason We are so sorry for your loss and are keeping your families in our prayers in this difficult time. You are all such a wonderful and loving family and gave Danielle everything possible and I know she’s up in heaven smiling and having fun. Please let us know if you need anything.
Love,
Dana and Jason

]]> Comment on Feb. 11th, 2010 by Roberta Thomas http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-393 Roberta Thomas Fri, 12 Feb 2010 18:58:42 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-393 Megan, Tony and Anthony, I am so sorry you lost your beautiful little Angel and Big Sissy. I am so thankful I was blessed to have been part of your care team and also just to have been able to spend time with Danielle and your Family...I love you all. If you ever want to talk, please don't hesitate to call me, I will be there for you. Whenever a Beautiful Butterfly lands on me, I will know it is Danielle saying, Hi :) Love, Roberta Megan, Tony and Anthony,
I am so sorry you lost your beautiful little Angel and Big Sissy. I am so thankful I was blessed to have been part of your care team and also just to have been able to spend time with Danielle and your Family…I love you all. If you ever want to talk, please don’t hesitate to call me, I will be there for you.
Whenever a Beautiful Butterfly lands on me, I will know it is Danielle saying, Hi :)

Love,
Roberta

]]> Comment on Feb. 11th, 2010 by Judy Goodart http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-392 Judy Goodart Fri, 12 Feb 2010 17:32:34 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-392 Meg, My prayers are with you and the family now. Danielle is happy and your "perfect" little princess now. I pray that you will feel the support and comfort of family and friends and know that you are being held in God's arms right now. "When our loved ones become a memory - that memory becomes a treasure". Gather all Danielle's treasures in your heart. She will be with you forever. Love, Judy Meg, My prayers are with you and the family now. Danielle is happy and your “perfect” little princess now. I pray that you will feel the support and comfort of family and friends and know that you are being held in God’s arms right now.
“When our loved ones become a memory – that memory becomes a treasure”. Gather all Danielle’s treasures in your heart. She will be with you forever.

Love, Judy

]]> Comment on Feb. 11th, 2010 by Heidi, Barry, Bryant and Philip http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-391 Heidi, Barry, Bryant and Philip Fri, 12 Feb 2010 16:09:58 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-391 Both Barry and I know this pain, but I also know in my heart that Danielle knewand felt your tremendous love for her. Her suffering is over and she is finally able to run, jump, play and be the darling little girl that she was. Love always, Barry, Heidi, Bryant and Philip Both Barry and I know this pain, but I also know in my heart that Danielle knewand felt your tremendous love for her. Her suffering is over and she is finally able to run, jump, play and be the darling little girl that she was.
Love always, Barry, Heidi, Bryant and Philip

]]> Comment on Feb. 11th, 2010 by Leslie Moldenauer http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-390 Leslie Moldenauer Fri, 12 Feb 2010 14:59:33 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-390 My thoughts are with you guys today and in the coming days sending out strength and hope that you can find peace. I know how hard it is to lose family, you are both angels in disguise. My thoughts are with you guys today and in the coming days sending out strength and hope that you can find peace. I know how hard it is to lose family, you are both angels in disguise.

]]> Comment on Feb. 11th, 2010 by Teryn http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-389 Teryn Fri, 12 Feb 2010 04:57:45 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-389 Dear Megan and Tony, I just logged on and saw your entry. I left you a message on your phone Megan and posted your entry above on the MLD family discussion list for those who don't read this blog. I hadn't gotten very far into the entry when the tears started flowing. Dean and I are at a scientific conference and had just heard John Crowley talk earlier this evening about the strength, hope, and joy our children fighting horrible diseases teach us. Danielle taught the same strength, hope and joy that he talked about. Danielle will forever be a Princess but now she is a beautiful princess with brightly glowing angel wings! Her spirit will live on in your heart and your memory of her strength will keep you strong in the coming days, weeks and months. We feel privileged to have met her and you, her incredible parents! Our tears fall with yours. Happy Danielle is finally free to do all a little girl should do, but at the same time hurting for the void you now feel at not being able to physically hold her. She will ALWAYS be with you in your hearts, of this I'm sure for I have walked the road you now must embark on. We love you guys and we are here for you! May God hold you tight in His arms and comfort you with a peace that passes understanding. Butterfly hugs!!! Teryn PS: For those who want to know, the MLD Foundation address is 21345 Miles Dr., West Linn, OR 97068 100% of all donations are used to carry out our mission of: C.A.R.E. Compassion for MLD Families, Increasing Awareness for MLD, Influencing Research toward a treatment/cure for MLD, Promoting Education about MLD. Dear Megan and Tony,
I just logged on and saw your entry. I left you a message on your phone Megan and posted your entry above on the MLD family discussion list for those who don’t read this blog.

I hadn’t gotten very far into the entry when the tears started flowing. Dean and I are at a scientific conference and had just heard John Crowley talk earlier this evening about the strength, hope, and joy our children fighting horrible diseases teach us. Danielle taught the same strength, hope and joy that he talked about. Danielle will forever be a Princess but now she is a beautiful princess with brightly glowing angel wings! Her spirit will live on in your heart and your memory of her strength will keep you strong in the coming days, weeks and months. We feel privileged to have met her and you, her incredible parents! Our tears fall with yours. Happy Danielle is finally free to do all a little girl should do, but at the same time hurting for the void you now feel at not being able to physically hold her. She will ALWAYS be with you in your hearts, of this I’m sure for I have walked the road you now must embark on. We love you guys and we are here for you! May God hold you tight in His arms and comfort you with a peace that passes understanding.

Butterfly hugs!!!
Teryn

PS: For those who want to know, the MLD Foundation address is
21345 Miles Dr., West Linn, OR 97068
100% of all donations are used to carry out our mission of: C.A.R.E.
Compassion for MLD Families, Increasing Awareness for MLD, Influencing Research toward a treatment/cure for MLD, Promoting Education about MLD.

]]> Comment on Feb. 11th, 2010 by Becky Kroes http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/comment-page-1/#comment-388 Becky Kroes Fri, 12 Feb 2010 04:49:11 +0000 http://daniellesacchetti.mldfamily.org/2010/02/11/feb-11th-2010/#comment-388 Danielle was loved by many never as much as you and Tony. We are praying for you all of you at this time. A very special girl is now free, God Bless Danielle, God get your family through this most difficult time. Love Becky Kroes Danielle was loved by many never as much as you and Tony. We are praying for you all of you at this time. A very special girl is now free, God Bless Danielle, God get your family through this most difficult time. Love Becky Kroes

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