Merry Christmas Everyone! As this year comes to a close all of us do a bit of reflecting and hoping for the new year to come. There are many things to be thankful for and to appreciate. Many things have happened this year that has brought about a certain kind of humbleness. A certain kind of love. And a realization that although life can be very short it is very beautiful. As Danielle continues to amaze her doctors, the shining light around her grows stronger and brighter. I spend most of my evenings in the rocking chair with her every night soaking up her beautiful face, the longest eyelashes I’ve ever seen and her soft, curly hair. Even though I sit with her every night it still seems like “not enough”. Not enough time, not enough love, not enough smiles. I couldn’t possibly get enough of her. I know on a higher relam that she understands ALL of this and even has the reason “WHY”. I can’t help but think she has had conversations w/the angels and fairies up above and hopefully she is looking forward to getting there. Looking forward to running free from MLD. That reality almost came about a few months ago and I am so blessed to have Danielle here to spend this Christmas with. This is one of those moments I wish I could bottle up in a glass jar and open it on a rainy day. I am sooooo thankful that the wonder med is still working like magic. No increase in dose or frequency. Such a simple med yet extremley complicated disease.
As Anthony is all excitied about waking up tomorrow morning and seeing the presents Santa left for him and Danielle, it’s equally exciting to see him BELIEVE. Believe in God and believe that life can be grand.
Thank you all for being there for us this year. Your kind words, thoughts, prayers and emails have meant so much. As we go into 2010 I hope for great health and prosperity for all of us and most importantly the wonderful comfort that Danielle has been receiving.
With love,
Megan
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Merry Christmas and enjoy your family hold onto dear Danielle keep her close to your heart, you are in our prayers, Becky Kroes
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God Bless
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Megan and Tony;
Our thoughts are always with you, we miss that we don’t get the opportunity to be with all of you, but know that you are in our thoughts and our prayers every day and we will think of you tomorrow as you enjoy the day with Danielle and Anthony….
Love Aunt Chriss -
Merry Christmas Megan, Danielle, Tony and Anthony! Such special moments together, while you can’t capture them in a jar, may you capture them in your heart to relive over and over again!
Butterfly hugs,
Teryn, Dean and Lindy -
God is good and in His infinite wisdom He chose a very special family for a very special little girl. I wish you all a Merry Christmas. Though most people would see the down side of this year, you choose to see the good and in that way God has blessed you. May He continue to be your strength in your time of need and may love continue to surround you from all who know you.
Love, Judy
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Megan, I wonder if you can know how many people you touch with Danielle’s story. Mom and I will be thinking of you and the whole family especially tomorrow. God’s blessings on you all. Love, Susie
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Wishing your family a very Merry CHRISTmas.
Hugs~
Casey, Mike and Andrew -
We’re so glad you have the blessing of Danielle with you this Christmas. It’s a simple threesome with Teryn, Lindy and I this Christmas so we are getting some special time, too.
Blessings to your entire family! Let us celebrate the birth of Christ, His joy, peace, grace, & ultimate healing – and our families on this Christmas day!
Dean, Teryn, and Lindy
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