Happy Easter!!! Hope everyone had a great day. We had a lovely day here. Anthony couldn’t sleep in because he was so excitied about the Easter Bunny coming. After eating about 2 lbs of candy for breakfast we skipped outside for a bit for an egg hunt. Then I made a traditional lunch and we laid around and watched the White Sox game. They won of coarse!!!!!! Danielle loved all the new hair gadgets and lip gloss the Easter bunnie(s) left for her plus all the cute clothes too!
Danielle has been having better days lately. We started w/a scope patch earlier in the week which we thought was the reason for her having a fantastic day on Wednesday but that theory was shot down on Thursday and Friday. Overall I do think she is more comfortable on this patch than any other med she has been on for vomiting/retching. As you’ll see below we’ve gotten more smiles and smurks out of her lately than in the past year combined. I’m hoping to hear back from the np at Children’s tomorrow about removing the PICC line. Can’t wait for that thing to be gone and to be done w/Children’s doctor’s.
Were getting closer to having Danielle’s wish from Make A Wish completed. We decided we are going to ask for a hottub for her. It’s about the only thing now that she can truly enjoy plus therapy water does wonders for everyone’s emotional status. She hasn’t been back to school on a regular basis for a while now so I’m hoping tomorrow is a start to a good week for her. Last week she decided it would be fun to once again trick everyone and spiked a 102.6 temp out of nowhere. So going w/the school policy that meant she had to be temp free for 24 hrs before she could go back. That ruled out school for the rest of the week.
Both Danielle and Anthony are in my brother’s wedding next month so I’m keeping my fingers crossed that she’ll have a fantastic day that day!!!!!
Thanks for checking in on Danielle today!
With love,
Megan