March 26, 2009

I can not believe that Danielle now weighs 45 lbs!!!!! It’s hard to believe that at one point during this disease was was 20 lbs lighter and surviving. Things have been really good the past 3 days. We have seen more smiles when we’ve seen in a year. Almost everytime I talk to her or Anthony talks to her she is smiling. It’s so great to see!! Just puts a permanent smile all over my face. Here is the best picture I have gotten in a long long time. She is still retching/vomiting though. That will never go away it seems. She was vocal for the first time in over a year though the other night. She was acknowledging Anthony jumping from couch to cough. Never really thought I”d encourage him to keep jumping but it kept her engaged. It was awesome!!!!!!

She is still struggling with the same ol’ issues but at least if she’s smiling or sleeping we know she’s comfortable for the moment.

Thanks for checking on Danielle today!

With love,

Megan

Happy again! 3/25/09