Feb 9, 2009

We are still here. Looks like we’ll be going home tomorrow. This morning has been rough…..actually the last few nights have been rough sleeping. Monitors are constantly going off (Danielle’s that is), our poor roommate is in a lot of pain and not much is working for her. The child in the next room is having adjustment issues w/this ng tube. Crying and screaming alot. Can’t wait to get home. Danielle is back to vomiting/retching again. Even though there is nothing going into her gut, she still has issues w/bile. We continue to drain the g-port so that it’s not sitting in her stomach but it doesn’t seem to be helping much the past few days.

I’m suppose to be getting trained today on care of the PICC line and hopefully the case manager will get going on supplies getting sent to the house. New pump, tpn/lipids, extentions, bandages, etc……all that has to be home before we get there.

A BIG thanks to everyone that has come to visit Danielle over the weekend! Lots of smiles out of her. A special thanks to Angelo and Lindsay for rearranging their schedules and fitting in time for us and especially for bringing Danielle and I matching jammies. The nursing staff here loves the look. Even a few doctors have commented on it. And Grandma Diane, thank you so much for wanting to take Anthony for us but I know with Al coming home soon from the hospital it would be too much for you.

Hopefully the next update we’ll be home.

Thanks for checking in,

Megan